“But You Don’t Look Sick!” – Understanding Invisible Illness Living with an invisible illness sucks. Not only do you feel in highly distressing agony every single day; you’re also trying to convince others of that when they look at you and fail to recognise the chronic pain that plays havoc with your daily life. It’s a dilemma that forms the basis of this infographic from chronic pain charity Burning Nights. Some of the statistics it shows are downright shocking – for example, it takes an average of six years from the first onset of pain symptoms for chronic pain to be formally diagnosed. Also, only 6% of invisible illness sufferers are diagnosed by the first doctor they consult about their symptoms. Even the huge majority of medical professionals can’t identify invisible illnesses, but those illnesses certainly exist, and they can totally destroy a person’s quality of life. Of course, it can be difficult to detect such illnesses in…

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How to perk yourself up when you’re low on spoons is a guest post lead by my dear friend, Lottie of Lottie L’amour, with submissions from incredible bloggers, enjoy! So all this week, you’ll have been reading posts from fellow spoonies on everything from real tales of chronic pain to fashion tips for spoonies. What better way to end it than on a real positive note celebrating the little wins we can score against chronic pain, whilst using as little energy up as possible! We all know now that even doing things like taking a shower or walking to the shops can be a real tough task for someone living with chronic pain, so I took to Twitter to ask fellow chronic pain sufferers what they do to chill on days when your spoons are low – so here’s a few tips from the spoon-dom (that’s a thing now, I…

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Initially I thought I should split this post into two but it sounded better together. These are life hacks on fashion and blogging (or freelancing/working in general) from bloggers who have tried and tested them, as well as some of my own. Fashion Nobody wants to miss out on wearing pretty clothes because they’re in pain, but at the same time spoonies don’t want to be in pain because of the fashion they’re choosing to wear.   Sarah Walker – www.moshingzombies.co.uk I personally find slip on shoes a lot easier as this reduces the amount of time required for me bending over as I don’t need any more pain in my back! Not necessarily a hack, but is useful if you had someone around who can help button/zip up your clothes for you. I know for me I struggle with fastenings on my back. For lazy days, I prefer staying in PJs…

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This post has been lead by Shona of Shona Louise and features bloggers with all different health conditions. Today myself and other spoonies (you’ll learn what that means shortly) want to give you an insight into what life is like living with chronic pain/a chronic illness. I usually blog about my genetic condition, Marfan Syndrome, and other topics over at Shona Louise but today I’m here to try to help get rid of the stereotypes often associated with chronic pain. A lot of people seem to already have an image in their heads of what someone who suffers with such pain or is disabled, looks like when in reality we are all different. So, what is Chronic Pain? Chronic Pain is often defined as being pain that lasts longer than 3 months, it can be anything from mild to excruciating and can either be continuous or come in episodes. Usually caused by injuries or…

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Living with Chronic Pain | Introduction to Chronic Pain Awareness Week When I was first told that as my pain had been so persistent that it was now classed as ‘chronic,’ I was obviously rather upset. I had been told by everyone, GPs, private physios, NHS physio, osteopaths and even the pain management people that it was just muscle damage. I say ‘just’, as muscle damage implies that one day it could heal, one day it could rebuild and one day I would be back to my old, healthy self. I’ve now been suffering from chronic pain for nearly 2 years – in fact I think I’ll just be coming back from holiday when it’s my 2 year anniversary of the car crash, I definitely won’t be celebrating. I’m in too much pain to function GG – I’ve never really wrote about my chronic pain and I don’t post about…

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